The following publications have resulted from our work co-developing, co-implementing, and co-evaluating the IKT Guiding Principles. Further information is also available via Open Science Framework.
Download the IKT Guiding Principles Postcard (pdf)
Télécharger le dépliant des principes directeurs de l’ACi (pdf)
Academic Publications
IKT Guiding Principles Manuscript
The paper presents the IKT Guiding Principles for conducting and disseminating spinal cord injury research in partnership. This paper describes the process of rigorously and systematically co-developing the IKT Guiding Principles.
Gainforth, H. L., Hoekstra, F., McKay, R., McBride, C. B., Sweet, S. N., Martin Ginis, K. A., Anderson, K., Chernesky, J., Clarke, T., Forwell, S., Maffin, J., McPhail, L. T., Mortenson, W. B., Scarrow, G., Schaefer, L., Sibley, K. M., Athanasopoulos, P., & Willms, R. (2020). Integrated Knowledge Translation Guiding Principles for Conducting and Disseminating Spinal Cord Injury Research in Partnership. Archives of physical medicine and rehabilitation, S0003-9993(20)31155-2. Advance online publication. https://doi.org/10.1016/j.apmr.2020.09.393
This scoping review presents systematic overviews of partnership principles and strategies identified from health research about spinal cord injury and related health conditions. These findings informed the development of the IKT Guiding Principles.
Hoekstra, F., Trigo, F., Sibley, K. M., Graham, I. D., Kennefick, M., Mrklas, K. J., Nguyen, T., Vis-Dunbar, M., S.C. I Guiding Principles Consensus Panel., & Gainforth, H. L. (2022) Systematic overviews of partnership principles and strategies identified from health research about spinal cord injury and related health conditions: A scoping review, The Journal of Spinal Cord Medicine. Available at: https://doi.org/10.1080/10790268.2022..203357
The IKT Guiding Principles project is included within the fourth volume of the IKTRN casebook series that highlights what really happens in IKT projects. This paper discusses the experiences and lessons learned by trainees who are part of the IKT Guiding Principles partnership.
Hoekstra, F., McKay, R. C., & Gainforth, H. L. (2021) A trainee perspective on an integrated knowledge translation approach to developing the first Integrated Knowledge Translation Guiding Principles for the spinal cord injury research system. In C. McCutcheon, J. Reszel, A. Kothari, & I. D Graham (Eds.), How we work together: The Integrated Knowledge Translation Research Network Casebook. Vol. 4. Integrated Knowledge Translation Research Network. Available at: https://iktrn.ohri.ca/projects/casebook/
This qualitative study provides a new understanding of spinal cord injury researchers’ and research users’ partnership experiences over time.
Hoekstra, F., Schaefer, L., Athanasopoulos, P., SCI Guiding Principles Consensus Panel., & Gainforth, H. L. (2021). Researchers’ and Research Users’ Experiences With and Reasons for Working Together in Spinal Cord Injury Research Partnerships: A Qualitative Study. International Journal of Health Policy and Management. https://doi.org/10.34172/ijhpm.2021.35
A ‘RECIPE’ with example principles and strategies for research partnerships
This study informed the co-creation process of the first Integrated Knowledge Translation (IKT) Guiding Principles for Conducting and Disseminating Spinal Cord Injury Research in Partnerships (www.IKTprinciples.com). Our findings will also help support the use of these new IKT Guiding Principles by researchers and research users.
Click here for a full list of research partnership strategies that are linked to the ‘RECIPE’.
You can read the original research in Evidence & Policy: Hoekstra, F., SCI Guiding Principles Consensus Panel, Gainforth, H.L. (2021). Principles and related strategies for spinal cord injury research partnership approaches: a qualitative study. Evidence & Policy. DOI: 10.1332/174426421X16161715996124./
Principles to guide spinal cord injury research partnerships: a Delphi consensus study
To establish consensus regarding principles that should be used to guide spinal cord injury (SCI) research partnerships between researchers and research users.
Gainforth, H.L., McKay, R.C., Femke, H., Jocelyn Maffin, J., Sibley K.M., Jung, M.E., & SCI Guiding Principles Consensus Panel. L. (2021) Principles to guide spinal cord injury research partnerships: a Delphi consensus study. Disability and Rehabilitation,. https://doi.org/10.1080/09638288.2021.1985635
This review of reviews presents overarching principles, strategies, outcomes, and impacts of research partnerships. The findings are synthesized from partnership literature across different research areas involving different groups of research users.
Hoekstra, F., Mrklas, K. J., Khan, M. McKay, R. C., Vis-Dunbar, M., Sibley, K. M., Nguyen, T., Graham, I. D., SCI Guiding Principles Consensus Panel., & Gainforth, H. L. (2020) A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature. Health Research Policy and Systems, 18,51. https://doi.org/10.1186/s12961-020-0544-9
A Review Protocol on Research Partnerships: a Coordinated Multicenter Team Approach
The review protocol outlines the five reviews that will take place to locate, review, and synthesize literature to better understand the evidence base of research partnerships.
Hoekstra, F., Mrklas, K. J., Sibley, K. M., Nguyen, T., Vis-Dunbar, M., Neilson, C. J., Crockett, H. L., Gainforth, H. L., Graham, I. D. (2018). A review protocol on research partnerships: a Coordinated Multicenter Team approach. Systematic Reviews, 7(1). https://doi.org/10.1186/s13643-018-0879-2
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